This collection belongs to two published papers: 1) "The Dutch registry for facioscapulohumeral muscular dystrophy: Cohort profile and longitudinal patient reported outcomes" by J. Kools et al., published in Neuromuscular Disorders in 2023, and 2) "Living with facioscapulohumeral muscular dystrophy during the first two COVID-19 outbreaks: a repeated patient survey in the Netherlands" by J.C.W. Deenen et al., published in Acta Neurolica Belgica in 2024.
